"Mama, can I brush your hair?"

“Mama, can I brush your hair?”

We are standing in the bathroom, having the conversation about washing our hands, with soap!, for the one hundredth time. Today. Perhaps he is trying to procrastinate or get me off topic, and it works. This is such an act of kindness, a small and precious moment, that I can’t say no.

He sits me down on his little stool, the one he doesn’t need anymore to reach the sink, and begins to work his chosen brush through my hair.  It is the longest it has ever been and I don’t fuss with it much these days- no straightening or curling iron, so it’s wildly wavy and more complicated than he originally planned, I think. But he’s careful and meticulous, gentle, laughing as he brushes it all over my face, Cousin It style.  He doesn’t know how much I love to have my hair brushed or how poignant this moment is to me.

When I was first diagnosed, my first thought was that I wasn’t going to live long enough for my son to remember me. He wasn’t yet three. I would be nothing more than his mama in pictures. In those first few months, it took every ounce of self control I had to not cry every time I looked at him. I worked so hard to make life look and feel normal for him, but my whole heart broke if I let my eyes linger on him too long. Tucking him into bed at night, I would cuddle him up and wait for him to go to sleep before I would silently cry long after he settled into the soft breathing of a slumbering toddler.

I would love to say that this dread went away after my big surgery, or that December after I received my official N.E.D. status, but it didn’t. I knew I could handle pain, and I wasn’t scared of death in its terminal finality, but I was still so terribly, dreadfully afraid of leaving him behind.

When we got through Year One, I knew I was one step closer to not being a myth in his mind. This spring, as he approaches five, I realized that it has been months since I had to pull over on the side of the road to cry. He has real memories now, and I’m pretty certain I’m one of them. I also understand that my anxiety around cancer runs far deeper than whether or not my son will remember me, and I’m working on navigating the terrain of “survivorship.”

In the two years since my tumor was found, I have read countless stories of parents with cancer, and my heart breaks every time.  Tonight I cried over the diagnosis of a man I’ve known my entire life, someone not that much older than me who has a little girl who deserves to have a father who can watch her grow up.

There is so much about this disease, or any one that makes you significantly contemplate your mortality, that weighs heavily on your mind. No one wants to see a child sick, or anyone for that matter, but a parent with cancer has the additional burden of not only wanting to get better, but also fretting and worrying about making sure life doesn’t come crashing down around their children or what will become of the little person who is their world.

I am more grateful than I will ever be able to say for the time I have been given to be part of his world, and it’s because I know that my time may be limited that I work every single day to make sure it is a better place. I’m sure he doesn’t know that in any conscious way, but my hope is that somewhere, ingrained in his memories of me, he knows how deeply he is loved and how his existence makes me fight to not just exist, but to truly live.

So for today, that’s what I have to offer. Nothing grand or especially noteworthy, but a reminder that we are here for all of these precious moments, which, done in kindness and love, cannot help but make the world better for us all.  No one knows how many days we have or how many memories will will get to create, so it’s best to honor every one we are given. Twenty years from now, he may not remember asking to brush my hair, but it is my hope that I will be around to remind him of how much those little things truly do mean. And if I’m not, I hope the accumulation of many little memories paint a picture that small gestures can yield indelible good.